Sunday, May 25, 2014

Another dose of hope....progress no matter how big or small, fast or slow is progress

**Wrote this Yesterday, Saturday the 24th. We had a busy, fun day so did not get a chance to post it:-)**

This morning Madasun woke up at 6 bright eyed and busy tailed, with a huge smile on her face. She said "ga ga good bye. Goodbye" to her Daddy as he got ready to head to work. She was a little down after that...because she is used to Daddy staying home all weekend but during the Summer their business is a bit busy so he works the occasional weekend. Anyway, I told her "well it is technically summer break now so that means " before I could finish she ran to her room and handed me clothes and said "walk. Walk." Holy shit! She's being so verbal for one. So AMAZING but the thing is during summer break we take early morning walk since we aren't running off to school and we don't go down to grandpa's shop to do paperwork until the late morning. Also, we live in AZ so summers are not exactly a beautiful 75-80degrees...more like 110-130!!! So morning is when we Desert dwellers fit in our walks, jogs etc. Basically the only time you are doing something outside here in AZ past noon is when you're swimming. Any way she remembered and she vocalized that. That is HUGE. Those who arent affected by Autism may think " Well a 7 year old should be able to remember things and tell you that is normal, big whoop!" Well, for those of us in Autismworld it is a big whoop, it's a miracle, its a ray of hope. It is a window inside their often locked up world. When our children show us things like this our hearts fill with hope, joy and we see our child is in there! Each time she shows us something like this our fears are eased a bit and our hope for the future grows a bit stronger. She is one amazing girl who overcomes challenges and proves each person that ever limits her WRONG! Can't is not in our vocabulary.

I never put limits on her, and I always push her to try and to learn and to do. I won' ever give up fighting for her. I will never give up on teaching her...until my dying breath I refuse to give up on her, she is in there. She is extraordinary and she deserves nothing less. Now, I won't lie there are things I treat her differently on, certain things that I let her do that typical parents of typical children don't. But you know, we aren't typical parents and typical children so that's what we do. But I never treat her as a disabled, helpless child because she is not. She is differently abled. She understands most things she's just trapped in her own mind sometimes and she's trapped in a body that she doesn't have control over 100% of the time. Madasun is capable of greatness and she proves this everyday. She shows her intellect, and when something can't be done the normal way she ponders a moment and figures out a way to do it. It might be a longer way, an odd way or a harder way but she figures out a way to do something in a way that she CAN do it. She's a problem solver, always has been. She showed advanced problem solving skills in early infancy. She is incredibly smart, a lot of people may think she is not smart or not in there since she's mostly non verbal. Once someone spends the time, sits and really watches and interacts with her they see what an amazing and intelligent person she is.

She is also the most kind hearted, gentle, genuine and accepting person. Madasun has a huge heart and she loves and respects every living thing equally. She doesn't hold grudges or judge someone based off gossip, or the clothes they wear or what they've done. She knows no hatred, judgment or cruelty to others, and accepts everyone open heartedly, even if they judge her, think she is "weird", or don't accept her...she doesn't hold a grudge against them. She sees things in such a beautiful and magical way and she has taught me some of my most treasured lessons. Madasun is wise beyond her young years.


Our children are strong, kind, they do not lie, cheat, judge or give up. I think the world could take a page or two from their book.