Our Monday morning was incredibly smooth, a little TOO smooth for being a Monday. After Morgun and I got home from taking Madasun to school my phone rang. The caller ID read "Dr.B" I had a wave of anxiety flood over my entire body. Madasun just had her blood work done a couple weeks ago. "Hi Dr needs Madasun in tomorrow morning" I instantly froze, why? Usually you don't go in unless test results are abnormal. "Her blood sugar is extremely high, he want her in ASAP. She will have to come in the morning because its a fasting test. We need to do a glucose test ASAP" Seriously? My non verbal moderate to severely autistic daughter has Sensory Processing Disorder, Anxiety, OCD and currently suspicious of a seizure disorder. Now we are going to throw some more bullshit on her plate!?
All I keep thinking is Madasun's insane love for juice and her dramatic fear of needles. Diabetes-Finger pricks- shots!? Yeah that's not going to be so wonderful for her. Another thing mommy has to do to her while she looks at me in fear and with a "mommy why are you doing this to me" look in her eye. Blood draws and IVs are the worse, she literally has 5 or more people holding her down to get the job done. When she had her PE tube placement surgery she was given a ton of Valium to relax her so they could get the IV in and she still needed Me, Daddy, 3 female nurses, 2 male nurses, her doc and the ultrasound tech to hold her down. She's strong, like crazy STRONG! I mean isn't there a point where are kids get a break? Like, OK Johnny you have XYZ you're good buddy, you get a "get out of jail free card" as far as any other issues.
Well unfortunately that isn't the way life works. Madasun is a little fighter, but sometimes I just wish life would throw her slow pitch instead of a constant curve ball.
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